Tag: lived experience

advocacy The Scientist and the Storyteller

The Scientist and the Storyteller

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Why this relationship matters There are many kinds of relationships that steady a life: family, friends, cherished companions (including the furry ones). Then there are the few who become anchors for the work we feel called to do. For almost two decades, Professor Daniel Le Grange has been one of...

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advocacy I’m discovering that life, like travel, can mean ‘becoming lighter’.

I’m discovering that life, like travel, can mean ‘becoming lighter’.

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Home sweet home. The suitcase and backpack are back on their shelf; a Japanese cat magnet grins on the fridge. The weeping cherry in the front garden is bursting into blossom, and the cats—fresh from their holiday at the Cat Cave—are auditioning for extra snacks. Travel expands me, yes—and coming...

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advocacy Together, we’re building a global community for eating disorder research and hope

Together, we’re building a global community for eating disorder research and hope

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In late 2023, I had a dream: to create a global meeting place for anyone and everyone working toward a better understanding and care for eating disorders. Together with my team, that dream has come to life as CoRe-ED – the Consortium for Research in Eating Disorders  – and I’m...

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advocacy Lived experience must lead change: eating disorders, systemic silence, and a layperson’s resolve

Lived experience must lead change: eating disorders, systemic silence, and a layperson’s resolve

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Professor Kim’s reply had arrived in my inbox the previous evening, but I couldn’t bring myself to open it right away. When I opened it the next morning at my desk, I felt relieved. Prof. Kim wrote: It feels like [the eating disorders field is] several decades behind compared to...

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advocacy 51% free: The turning point in my eating disorder recovery

51% free: The turning point in my eating disorder recovery

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When I reached 55, after 44 years under the iron grip of anorexia nervosa, something inside me shifted. For the first time, I felt emphatically that I had crossed the threshold to a “51 per cent healthy self.” That moment wasn’t a magic cure—it was the hard-won payoff of decades...

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advocacy Eating disorder recovery as an older adult

Eating disorder recovery as an older adult

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Growing old isn’t a privilege I take for granted, but it isn’t easy in today’s youth-obsessed world. When I was in my 40s, I heard, “The golden years aren’t so golden.” I vowed never to say that and, at age 69, I’ve kept that promise. This doesn’t mean, however, that...

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advocacy Exploring food obsessions and ‘a perfect plate’

Exploring food obsessions and ‘a perfect plate’

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Realising that today’s teenage girls live in a world different from mine—that I’m a complete alien to them—makes me both uneasy and shiver. It aches, too, to think that their lives began from a random point in such recent years, detached from the schemes and backstories that shaped me. So,...

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advocacy Comorbidities and eating disorders

Comorbidities and eating disorders

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Improving eating disorder care for underserved groups In the fourth post that June Alexander has adapted from Alykhan Asaria’s article on improving eating disorder care for underserved groups, three more underserved groups are discussed – people with comorbidities, neurodiverse people, and digitally excluded people. People with comorbidities Some people have comorbidities...

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advocacy Males with eating disorders and caregivers need recognition and support too

Males with eating disorders and caregivers need recognition and support too

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This sixth and final post that June Alexander has adapted from Alykhan Asaria’s article on improving eating disorder care for underserved groups, discusses two more underserved groups – a) males and b) caregivers and loved ones – together with the conclusion. Males Male eating disorder sufferers are underserved due to their...

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advocacy The system won’t save us: Reflections from Korea’s EDAW 2025

The system won’t save us: Reflections from Korea’s EDAW 2025

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Korea’s Eating Disorder Awareness Week (EDAW) 2025 was a whirlwind. I lived like a ghost, confined to my room packed with boxed props. My resignation letter had been submitted to my full-time job. My focus was stretched thin across every detail of the daily sessions: ticketing, Instagram promotions, Google Meet...

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