Join the cicadas chorusing loudly to advocate about eating disorders around the world
Join the cicadas chorusing loudly to advocate about eating disorders around the world
Professor Daniel Le Grange, who presented the Meehan/Hartley Award to me, at the AED ICED in San Francisco last week.
I liken my life to that of a cicada, an insect that lives underground in the dark for many years, before emerging into the light for a brief and noisy appearance.
Upon receiving the Meehan/Hartley Award for Public Service and Advocacy, at the Academy of Eating Disorders ICED, I was allowed two minutes in the limelight on stage in which to stay ‘thank you’ on behalf of all people, everywhere in the world, who has, or has had an eating disorder. This is what I said:
My memoir
My Aussie family can’t be here today, so I’ve brought a little mate from home to share
this moment–my first diary, drawn upon in my memoir, A Girl called Tim. Our relationship began at age 11, the same year anorexia developed.
I was ‘underground’ with my eating disorder for 44 years until age 55. My diary was my refuge. When I broke free and surfaced, in 2006, I wanted to share my story because I did not want others to suffer like me.
The diary helped smooth the transition from the deeply private, isolated world into the mainstream and public world and it was only then I discovered this world of research, treatments, and support groups giving hope in the eating disorder field. So now, besides telling my story, I wanted others to know about your great work, let them know they are not alone, and give hope.
I especially thank Claire, Founder of the Butterfly Foundation in Australia, who in 2007, upon hearing of my desire to DO something, drew my attention to Daniel’s evidence-based research with Family Based Treatment. I immediately thought: ‘I wish this support for families had been around when I was a kid’.
My Kid is Back – Empowering Parents to Beat Anorexia Nervosa
Daniel and I together wrote My Kid is Back. I wanted today’s children to have every chance of getting their life back quickly with early intervention, and for families to be unified and strengthened, not isolated and destroyed like mine, by an eating disorder.
From this, other books have flowed. Eight in 10 years. See most of them here.
Many of you here today, have contributed to them. Thank you.
Many people not here today, your patients, also have contributed.
Inclusion of the patient’s voice, to cite Janet Treasure, is ‘like sprinkling a little fairy dust’ on your research findings.
Take home message
Listen to your patients. Help them find their voice. Include them. Never give up. Keep a diary.
It can be a helper and bridge builder too. There is only one rule. Write a date. This will help your evidence base. There are many tips in my upcoming book, The Diary Healer. It includes many voices, voices of patients, from around the world. The cicadas are singing loudly.
Thank you.
About the Meehan/Hartley Award for Public Service and/or Advocacy
In receiving the Meehan/Hartley Award, I feel deeply honoured to join a list of people I admire greatly, and have been inspired by for years, in the eating disorders community.
The AED website explains this award is made to members of the eating disorders community (whether or not they are AED members) who have demonstrated leadership and service in the public domain, driving services, policy, public awareness or action for sufferers and/or carers. Wonderful previous winners comprise:
2015 Chevese Turner
2014 Laura Collins
2013 Karine Berthou
2012 Mary Beth Krohel
2011 Cynthia Bulik
2010 Mary Tantillo
2008 Susan Ringwood
2007 Kitty Westin and Claire Vickery
2006 Michael Levine, PhD, FAED
2005 David Herzog, MD
World Eating Disorders Action Day, June 2
An historic world eating disorder advocacy event will take place on June 2. A 100 per cent voluntary steering committee, on which I server as major blogger gatherer, is working with many helpers comprising amazingly dedicated team members from around the world. We are all working to help bring home important messages to the world about eating disorders with the aim of inspiring understanding, awareness and action at all levels. It’s exciting
Join me in supporting World Eating Disorders Action Day. Be sure to follow along on twitter @WorldEDDay and hashtag #WeDoAct, #WorldEDActionDay, @WorldEatingDisordersAction on Instagram and World Eating Disorders Action Day on Facebook.
As founder of Life Stories Diary my prime motivation is to connect with people who want to share their story. Why? Because your story is important. My goal with this blog is to provide a platform for you to share your story with others. Building on the accomplishments of The Diary Healer the Life Stories Diary blog will continue to be a voice for people who have experienced an eating disorder, trauma or other mental health challenge, and provide inspiration through the narrative, to live a full and meaningful life.
My nine books about eating disorders focus on learning through story-sharing. Prior to writing books, which include my memoir, I had a long career in print journalism. In 2017, I graduated as a Doctor of Philosophy (Creative Writing), researching the usefulness of journaling and writing when recovering from an eating disorder or other traumatic experience.
Today I combine my writing expertise with life experience to help others self-heal. Clients receive mentoring in narrative techniques and guidance in memoir-writing. I also share my editing expertise with people who are writing their story and wish to prepare it to publication standard. I encourage everyone to write their story. Your story counts!
Contact me: Email june@junealexander.com and on Facebook and LinkedIn.
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The diary, a book in which a daily record of events and personal experiences can be kept, offers a window into life in the past.
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